Respite care: what it is and how to find it near you

Every family caregiver reaches a point where they need a break. Not because they have given up or stopped caring, but because sustaining quality care over months and years requires rest and restoration. Respite care is the formal term for that break, and it is one of the most important and most underused supports available to family caregivers.

This guide explains what respite care is, the types available, how to access it, and what it costs.

what is respite care?

Respite care is temporary relief provided to family caregivers by a professional caregiver, volunteer, or care facility. It allows the primary caregiver to rest, attend to their own needs, handle other responsibilities, or simply take time away from the demands of caregiving. Respite care can range from a few hours per week to several weeks in a care facility and is available through government programs, non-profit organizations, and private care providers.

Why respite care matters

Research consistently shows that caregiver burnout, depression, and health decline are directly linked to insufficient access to breaks. The caregiving role is one of the most demanding sustained commitments a person can take on, and without regular relief, care quality suffers, caregiver health suffers, and the entire arrangement becomes less sustainable.

Using respite care is not abandoning the person you care for. It is investing in your ability to continue caring for them well.

Types of respite care

In-home respite care

A trained caregiver, home health aide, or volunteer comes to your family member’s home to provide care while you take time away. This is the least disruptive option because the care recipient remains in their familiar environment.

Adult day programs

Day programs provide structured activities, social interaction, meals, and health monitoring in a community setting during daytime hours. Many programs operate Monday through Friday and are available through senior centers, memory care facilities, and non-profit organizations.

Short-term residential respite

Some assisted living facilities and nursing homes offer short-term or temporary stays for care recipients while their primary caregiver is unavailable. This is often used when a caregiver needs surgery, a vacation, or is dealing with their own health situation.

Emergency respite

When an unexpected crisis takes a caregiver out of the role suddenly (a medical emergency, a family crisis, a fall of the caregiver themselves), emergency respite services can step in. Having an emergency respite plan before you need it is strongly recommended.

How to find respite care in your area

  1. Contact your local Area Agency on Aging (find yours at eldercare.acl.gov or call 1-800-677-1116)
  2. Search the ARCH National Respite Network locator at archrespite.org
  3. Contact local home health agencies about in-home respite services
  4. Check with your parent’s physician for referrals to adult day programs
  5. Ask your state Medicaid office whether respite care is covered under any waiver programs in your state
  6. Contact disease-specific organizations (Alzheimer’s Association, ALS Association, etc.) if applicable, as many fund respite care for caregivers of people with specific diagnoses

How much does respite care cost?

Type of respite careTypical cost rangeFunding options
In-home respite (HHA)$15-$25/hourMedicaid waivers, NFCSP, private pay
Adult day program$70-$130/dayMedicaid, VA, some private insurance, private pay
Short-term residential$150-$350/dayMedicaid, some long-term care insurance, private pay
Volunteer respite (community)Free to low-costNon-profit programs, faith communities, NFCSP
Emergency respiteVaries by providerNFCSP, crisis funding, private pay

Funding sources for respite care

National Family Caregiver Support Program (NFCSP)

Administered through the Administration for Community Living and the Older Americans Act, the NFCSP provides funded respite care and other services to family caregivers of adults 60 and older. Contact your local Area Agency on Aging to apply.

Medicaid HCBS waivers

Many state Medicaid waiver programs include a respite care benefit. The number of covered hours and eligibility requirements vary by state. Ask your Medicaid case manager specifically about respite care coverage.

VA caregiver programs

The VA Program of Comprehensive Assistance for Family Caregivers (PCAFC) includes a respite care benefit for qualifying caregivers of post-9/11 veterans. The VA Caregiver Support Program also offers respite services for caregivers of veterans of all eras.

State-funded programs

Many states have supplemental programs that fund respite care beyond federal programs. Contact your state’s department on aging or department of health for current options.

Planning ahead: building respite into your routine

The most effective use of respite care is not reactive. It is planned. Caregivers who build regular, predictable breaks into their schedule before they are in crisis function better and sustain care for significantly longer.

  • Schedule regular weekly or biweekly respite in advance
  • Identify at least one emergency respite contact and plan
  • Talk to your care recipient about respite as a normal part of the care arrangement
  • Use respite time for genuine rest and restoration, not just catching up on other responsibilities

FAQ: respite care

Will my parent be okay while I am away?

Qualified respite caregivers are trained to provide safe, supportive care. Starting with shorter absences and building trust gradually with a specific caregiver helps both you and your parent adjust comfortably to the arrangement.

My parent refuses to have anyone else care for them. What do I do?

This is common. Strategies include introducing the respite caregiver first as a visitor before a formal care visit, involving your parent in choosing who comes, and framing the time as an activity for them rather than care for them.

How do I know if a respite caregiver is trustworthy?

Use licensed home health agencies with background-checked staff when possible. Ask for references. If possible, be present during the first visit. A caregiver who has completed formal training through a recognized program such as NCOOA’s brings verifiable credentials to the role.

Is respite care tax-deductible?

In some cases, respite care costs may qualify under the medical expense deduction or dependent care tax credit. A tax professional can advise on your specific situation.

You deserve support too

Respite care is not a luxury. It is a fundamental component of sustainable caregiving. NCOOA supports family caregivers by providing accessible training that builds competence, confidence, and career options for everyone in the caregiving community.

>> Explore NCOOA’s caregiver training and certification programs

Browse all NCOOA caregiver programs to find the training that fits your needs and goals.

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A career as a home health aide offers steady employment, genuine purpose, and a clear entry point into the broader healthcare field. With online training through NCOOA, you can earn your certification on your own schedule.